tag:blogger.com,1999:blog-6711468273779529405.post5726869748371698593..comments2014-02-04T13:57:06.618-06:00Comments on Bit by Bit: Bit by BitSusanhttp://www.blogger.com/profile/08255161396285648543noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-6711468273779529405.post-47761099449101738072014-02-04T13:57:06.618-06:002014-02-04T13:57:06.618-06:00I am so excited to have run across this blog! My s...I am so excited to have run across this blog! My son Jase was diagnosed with LGS in 2008 at the age of 9 following an EEG . We were devastated but God is amazing and answered our prayers in April of 2013 when an EEG showed that he no longer had the reading that <br />S required for an LGS diagnosis! He continues to have mild myoclonus episodes and takes a small amount of Banzel and Topomax. So thankful to read about God's miracles occurring elsewhere!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6711468273779529405.post-40585726299891898762010-07-09T08:11:58.437-05:002010-07-09T08:11:58.437-05:00Wow. I read your story and felt like I was almost ...Wow. I read your story and felt like I was almost reading about my daughter. At 2 and a half, she randomly started having seizures and was diagnosed LGS. She was having drops so bad we ended up having to get her a helmet. Her poor body looked like she'd been through WW3, cuts bruises, etc. I felt bad that her most used word was "boo boo". She was on Phenobarb, Keppra and Banzel. Then, six weeks ago, everything just stopped. No drops, no myclonics, no nothing. And she's come back to us and is acting like a normal child. I agree, amen and praise the lord. Each day they wake up and don't have a seizure is an amazing day right now. I wish you and your family much luck.Anonymoushttps://www.blogger.com/profile/02098238560304565742noreply@blogger.comtag:blogger.com,1999:blog-6711468273779529405.post-49366466835174984152010-06-17T18:54:25.442-05:002010-06-17T18:54:25.442-05:00My heart soars each time I read your posts. Micha...My heart soars each time I read your posts. Michael has such a special spot in my heart and I think of him often. Thank you so much for posting the blog. I feel connected to him through it. My prays are always with all of you.<br /><br />Judy J.Wayne & Judyhttps://www.blogger.com/profile/01962774427633429008noreply@blogger.comtag:blogger.com,1999:blog-6711468273779529405.post-28972059546855593662010-05-26T12:44:55.873-05:002010-05-26T12:44:55.873-05:00Susan, that is the most amazing and touching stor...Susan, that is the most amazing and touching story about Michael. The hard work, devotion and dedication of you and Craig to hang in there and search and search until you found what is right for Michael..that is absolutely wonderful that he has gone 30 days w/o a seizure and hopefully this is the big turning point you have been praying for. Its a wonderful blog<br />FaithFaithnoreply@blogger.comtag:blogger.com,1999:blog-6711468273779529405.post-77594051005323736072010-05-19T21:02:48.633-05:002010-05-19T21:02:48.633-05:00So happy that you are documenting this journey. F...So happy that you are documenting this journey. For you, and for others. Go Michael Go...thank you, God!mbchttps://www.blogger.com/profile/03712262252620163765noreply@blogger.comtag:blogger.com,1999:blog-6711468273779529405.post-22376158885631506172010-05-14T23:30:15.962-05:002010-05-14T23:30:15.962-05:00What a journey this has been for your family, Susa...What a journey this has been for your family, Susan. You and Craig and all three of your sweet boys have shown incredible strength, courage and persistence. I know you won't ever give up. It seems like you are on the right road. Don't ever forget that there's an army of friends and family who are behind you and love you. <br />I look forward to following your blog!<br /><br />Terri T.<br />(Love that precious photo of Michael. What a cutie!)Terri T.noreply@blogger.comtag:blogger.com,1999:blog-6711468273779529405.post-62585808177098436272010-05-13T12:38:21.541-05:002010-05-13T12:38:21.541-05:00I wholeheartedly believe in alternative treatments...I wholeheartedly believe in alternative treatments. It is wonderful that you found Dr. Stewart. It breaks my heart to read all that you all have been through and the lack of support from the neuros. But that has been my experience also. I hope you get to keep counting those seizure-free days!!!<br /><br />ElaineSophie's Story by Elainehttps://www.blogger.com/profile/00415731740298071423noreply@blogger.com