Childhood epileptic encephalopathy (Lennox-Gastaut syndrome [LGS]) is a rare and debilitating form of childhood-onset epilepsy. The syndrome is characterized by frequent seizures and multiple seizure types, a resistance to medications or therapies, regression, and an abnormal EEG with generalized slow spike-and-wave discharges. LGS constitutes between 1-4% of pediatric epilepsies and typically appears between the second and sixth year of life.

Friday, June 25, 2010

Michael Update 6-25-10

Michael had a great doctor appt yesterday. Looks like in about 4 weeks we will stop the remaining anti-virus and begin to wean him off the remaining anti-seizure medication. The docs were encouraged by his progress and 82 days being seizure free. We will also begin a few other immune system and cell rebuilding supplements but nothing prescription. He will also transition to a B-12/B-6 cream vs. the daily shots. All in all, good report. Michael appears to be gaining momentum on learning too. He is interacting with his brothers more and they seem to enjoy that too. Matthew for sure loves picking on Michael and carrying him around. At 45lbs, no easy feat for a 6 year old. Bit by Bit!!


TheKennedys said...

YEAH!!! Wonderful news!!! Love to hear it!

Anonymous said...

kennedys . . .


this is doug lowell, president of find a cure panel.

i was playing around on your site and wanted to introduce myself.

can you find me on facebook or email me at

looking forward to knowing you.