This blog is about our son Michael Jesse and his battle with Lennox Gastaut Syndrome. He is 3 1/2 and was diagnosed at 18 months. We will write about Michael's journey, things we try and all of the celebrations and blessings in his life. April 15, 2010 was his first day without a seizure.
Childhood epileptic encephalopathy (Lennox-Gastaut syndrome [LGS]) is a rare and debilitating form of childhood-onset epilepsy. The syndrome is characterized by frequent seizures and multiple seizure types, a resistance to medications or therapies, regression, and an abnormal EEG with generalized slow spike-and-wave discharges. LGS constitutes between 1-4% of pediatric epilepsies and typically appears between the second and sixth year of life.
Thursday, June 10, 2010
Starting summer school
Michael is starting summer school this week and will go everyday from 8:30-11:30. My sweet friend Courtney told me about the Children's Autism Center and although Michael has not been diagnosed with autism it is a wonderful program for all kids with developmental delays. The center is in Round Rock so it is close to home. He will receive three hours a day of one on one ABA/Verbal Behavior Therapy and we are so looking forward to the progress. On a sad note, Michael's PPCD teacher and her aide have decided to move to kindergarten. Although my teacher side understands about needing a change when you are teaching, my mommy side is totally devastated. Mackie and Jana are the best and we will miss them terribly. We can only pray that they will find another wonderfully caring teacher for the kiddos. Michael continues to go to speech/OT on Tuesday and Thursday. We love Kristin, Jennifer and Tara and appreciate all they do. It has been a great summer so far.
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